Monday, October 16, 2006

Do I Have Enough Vacation Time?

I plan to take 3 weeks off for my surgery. Most people who have had Lap RNY say they feel fine to go back to work in 2 weeks (some even sooner), but I still feel more comfortable taking a full 3 weeks off. For a couple reasons:

  • I drive 90 minutes each way to work - which equals 15 hours a week in the car. This is an exhausting part of my job and I want to make sure that I'm at my healthiest possible recovery point before I start making that long drive everyday. 
  • I want to have enough time to adjust to my new diet before I'm thrown into the routine of "real-life" and having to eat at work or on the run. Those habits of proper eating need to be well ingrained before I jump back into my 12 hour days at work. 
  • I missed a vacation this year because of all my health problems / doctor appontments - I literally used my vacation time for non-vacation stuff. So it would be nice to have a few extra days off to relax and recouperate. 

But here's my dilemma. I'm really really low on vacation and personal time right now. Like I said above, I've used a lot of my vacation time over the past year for doctor appointments and such, so now I'm running low.

For my 3 weeks off I need a total of 72 hours of vacation or personal time.

40 hours for the first week
16 hours for the second week
16 hours for the third week

I have short-term disability pay but that kicks in after the first week of being off, then only pays 60% of my wage. As you can see by the need for 16 hours per week after the first one, that would cover that missing 40% of my pay so I wouldn't have to live with smaller paychecks while I'm off.

RIGHT NOW - I have enough time. But I need to take a few days off before my anticipated surgery of mid-November. So that leaves me short.

After the first of the year I'll get a renewal of my personal hours and get an additional 48 hours. So then I'd be all set. And by January 1st, I will have earned another 28 hours of vacation time.

And this is where I'm having issues. Do I just schedule surgery for now and take the pay cut if I come up short on hours? Or do I put the whole thing off until after the first of the year when I'll have enough time. And technically because of issues at work, I would have to put off surgery until mid-February if I wait longer than December 1st.

I need to do some more number-crunching, I think. But it helps just to write it all out here so I can see it in black and white. But then again, why am I worrying about this when I haven't even been approved for surgery yet!

Talk to you soon!
~Pam

Playing the Waiting Game ...

I've never been a patient person and having to wait for other people to deal with paperwork and such is driving me nuts!

I called my surgeon's office late last week to find out the progress. I have all my requirements met and they are in my file, but the insurance expert folks at the surgeon's office have to review the file and prepare the paperwork to be sent to BCBS. The receptionist confirmed that they indeed had all my paperwork. She said: "We have 3 staffers to review over 1000 files, hopefully they'll get to your's by the first of the week." Ok, so it's Monday today which is officially the first of the week. But I think I'll wait until Wednesday to call them again to find out where I am in line.

So until then I get to practice my patience skills. Ha!

Talk to you soon,
~Pam

Thursday, October 12, 2006

What I've Learned About PCOS ...

In the past few weeks I’ve learned a lot of new things about how my body is working – or not working, actually. I’ve read so much information that my poor brain is in information overload these days. So I thought I’d share a bit of it here in case it might help others who have PCOS and also share some resources that I’ve found helpful.

What is PCOS?

Polycystic ovary syndrome (also known clinically as Stein-Leventhal syndrome), is an endocrine disorder that affects 5–10% of women. It occurs amongst all races and nationalities, is the most common hormonal disorder among women of reproductive age, and is a leading cause of infertility.

The symptoms and severity of the syndrome vary greatly between women. While the causes are unknown, insulin resistance (often secondary to obesity) is heavily correlated with PCOS.

What are the Symptoms?

  • Irregular menstrual periods - no menstrual period, infrequent menses, and/or irregular bleeding. Any type of irregularity could be a symptom of PCOS.
  • Oligo or anovulation (infrequent or absent ovulation) — While women with PCOS produce follicles — which are fluid-filled sacs on the ovary that contain an egg — the follicles often do not mature and release as needed for ovulation. It is these immature follicles that create the cysts. 
  • Hyperandrogenism — Increased serum levels of male hormones. Specifically, testosterone, androstenedione, and dehydroepiandrosterone sulfate (DHEAS). 
  • Infertility – often the result of anovulation.
  • Cystic ovaries — Classic PCOS ovaries have a "string of pearls" or "pearl necklace" appearance with many cysts (fluid-filled sacs). 
  • Enlarged ovaries — Polycystic ovaries are usually 1.5 to 3 times larger than normal. 
  • Chronic pelvic pain — The exact cause of this pain isn't known, but it may be due to enlarged ovaries leading to pelvic crowding. 
  • Obesity or weight gain or the inability to lose weight — Commonly a woman with PCOS will have what is called an apple figure where excess weight is concentrated heavily in the abdomen. 
  • Insulin resistance, hyperinsulinemia, and diabetes — Insulin resistance is a condition where the body's use of insulin is inefficient. 
  • Elevated LDL and reduced HDL cholesterol levels, as well as high triglycerides.
  • High blood pressure
  • Hirsutism (excess hair) — Excess hair growth such as on the face, chest, abdomen, thumbs, or toes. 
  • Alopecia - male-pattern baldness or thinning hair 
  • Acne/Oily Skin/Seborrhea — Oil production is stimulated by overproduction of androgens. 
  • Seborrhea is dandruff — flaking skin on the scalp caused by excess oil. 
  • Acanthosis nigricans (dark patches of skin, tan to dark brown/black) — Most commonly on the back of the neck, but also but also in skin creases under arms, breasts, and between thighs, occasionally on the hands, elbows and knees. The darkened skin is usually velvety or rough to the touch. 
  • Acrochordons (skin tags) — Tiny flaps (tags) of skin that usually cause no symptoms unless irritated by rubbing.Prolonged periods of PMS-like symptoms - bloating, mood swings, pelvic pain, backaches Source: INIID
Because the weight gain and inability to lose weight symptoms noted above are of the greatest importance to me, I’ve concentrated on researching how insulin and insulin resistance plays a role in obesity. It is not clear which came first – PCOS or Insulin Resistance – or which syndrome causes the other.

However, as PCOS symptoms worsen, insulin resistance also gets worse, which then causes additional weight gain, and with additional weight gain the symptoms of PCOS get worse again … and the circle continues. So getting just one part of that circle under control will help to stop the cycle.

How Does Insulin Work?

Insulin is a hormone secreted by the pancreas. It helps the body convert food into energy by converting carbohydrates into blood glucose which is used by cells to run the mechanics of our body. Once converted, glucose can pass from the blood stream into the cells that need energy to function. Inside the cell, glucose is either used for energy right away or stored for future use in the form of glycogen in liver or muscle cells.

The body’s capacity to store glycogen is limited and can be depleted quickly (10-12 hours). The average person can store approximately 300-400 grams of carbs (once converted to energy) in your muscles and about another 75-100 grams in the liver. (For comparison, 100 grams of carbs is equivalent to about 2 cups of cooked pasta.) When both the liver and muscles are glycogen full, excess carbohydrates are stored in adipose tissue or body fat.

What is Insulin Resistance?

Insulin resistance occurs when the normal amount of insulin secreted by the pancreas is not able to properly make the conversion of food into energy because of some defect in the process (researchers are still trying to figure out the “why’s”). Because the first release of insulin didn’t do the job it was suppose to, the pancreas secretes additional insulin to maintain the proper level of blood glucose. Eventually our body stops responding to the excessive amount of insulin and will not be able to use the food you eat as energy – thus those calories are quickly stored in adipose tissue (body fat). Eventually tests will show that insulin levels will stay high over time, when it should instead go up with each meal and then return to normal. And if blood glucose levels remain high for extended periods of time, it essentially blocks our body’s ability to use fat cells for energy.

What’s the Solution?

Diet, lifestyle and medication are the most common recommendation in the research that I’ve read. For decades doctors have recommended the same types of diets for their patients to lose weight - low-fat / high-carb / caloric restricted diets with moderate exercise. However, for PCOS and Insulin Resistant patients these types of diets will actually worsen the symptoms – and this new research seems to be slow in getting into the doctor offices of our primary care physicians.

Doctors are still recommending the same, across-the-board diets no matter what types of illnesses their patients have. But the plan an insulin-resistant patient should be following is actually low-carb / high-protein / moderate-fat type of diet with a daily vigorous exercise program. Your diet should have 30-40% of total calories coming from carbs, 40% coming from protein and the remainder from “good” fats. Avoiding refined / processed carbs is the key and trying to eat as close to whole foods as possible – such as whole wheat bread rather than white bread or old fashioned oatmeal rather than the little packets of instant. Or better yet, concentrating on getting your carbs from veggies, fruits, nuts and seeds instead of wheat or grain products. There is also some medications that can aid in putting insulin levels back in balance and I plan to explore these further and talk to my doctor about this option.

What did I do wrong?

I’ve been dieting for months now – actually about 14 months – and have had very little success.

I lost 24 pounds in the first 4 months, then not another single pound for 6 months after that. No matter what I tried (diet change, workout change) I couldn’t lose any more weight. I continued eating right and exercising during that 6 month plateau. But eventually I got weak, frustrated and discouraged. Over the last 4 months, I gradually cut back on my workouts – from 6 days of intense workouts to 3 days a week. I saw the weight creep back on slowly but I just didn’t have the heart to go back to the intense workouts that were doing nothing for my weight loss.

I also talked to my doctor about what I could do to make things work better. Instead of any real help, my doctor (fully aware of my PCOS) simply “patted me on the head”  (metaphorically, of course) and told me to use more willpower and I’d lose the weight.

At that time I didn’t know about the connection between PCOS and weight - is it right to assume he didn’t either? He’s my doctor; I should feel like I can trust him when it comes to my health. Unfortunately, I no longer have that trust.

But now that I know about the connection between carbs, blood sugar levels and my insulin resistance (I haven’t been tested yet, but all the signs are there) --- I can look back at my food journal and know that I wasn’t eating right for my condition. Instead of the 40-40-20 formula I was eating 60c-20p-20f. WOW!  No wonder my body was rejecting my weight loss efforts. I was sabotaging myself and didn’t even know it.

The online food journal was estimating that I should have been losing 30 pounds every 10 weeks. If that were true, then would have lost 150 pounds within a year. But the calories-in vs. calories-out theory that may hold true for healthy people, does not apply to those who have a metabolic issue that prevents weight lose.

Resources
I’ve done a ton of research and have found several great resources. All of the information above has been collected from various websites and books I’ve found in the past few weeks. I’ll share several resources here:

The International Council on Infertility Information Dissemination, Inc.
This website focuses on infertility, however they have an outstanding section on PCOS that I found the most helpful. The FAQs are thorough and covers many things that other sites do not.

Soul Cysters
This is a “support group” type website with forums and discussions with women who have PCOS. The “Research” section is comprehensive and in depth. I haven’t fully explored all there is to find at this site, but it is at the top of my to-do list.


Polycystic Ovarian Syndrome Association
This website is an actual association where doctors, professionals and patients can join for a fee. However, there is a ton of great information here. I especially enjoy the forum section where people are discussing their treatments and symptoms.

Natural Health Solutions for PCOS
Dr. Nancy Dunne dedicated her medical practice to the treatment of PCOS after her daughter was diagnosed. She takes a natural approach to the treatment of PCOS and its symptoms through a specialized diet of whole foods and the elimination of wheat/grains and dairy products. The resources here are abundant and often have a different spin from other researchers because of her natural approach. She has also written a book (either hard copy or downloadable e-book) that has more information than you ever thought you needed to know! I bought it and am about ¼ of the way through so far.

This post has gotten really long, so I’ll close for now. As I learn more about PCOS and how it affects my weight loss journey, I’ll share it with you here.

Talk to you later
~Pam

Thursday, October 05, 2006

PCOS Insulin Resistence & Weight Loss

PCOS Support Groupswww.ProjectPCOS.org
I've always considered WLS as the very last resort for me - the only thing to be considered when everything else had failed. About 16 months ago I started thinking about WLS, but ended up wanting to try on my own just one last time.

So I'm just coming off of 14 months of self-imposed dieting, exercising and self sacrifice because I knew I needed to give my hardest and most dedicated effort before I even thought about WLS. I consulted my doctor several times (2 different doctors, actually) throughout the process and mostly just got a pat on the head and was told to keep up the good work, stick with the plan and just have more willpower.

So this past August I finally gave up in frustration after losing a mere 24 pounds then putting them all back on during the dieting process -- and decided to go forward with having weight loss surgery to help me get healthy. Up until about 2 weeks ago I've been at peace with my decision to have WLS. Then I read something on some message board or forum somwhere that caught my attention. Someone mentioned that they had PCOS (polycystic ovarian syndrome) and that it contributed to her weight gain and her inability to lose weight before her surgery.

This shocked me. I was diagnosed with PCOS over 5 years ago and never knew there was a connection with my weight. Oh sure, the doctor gave me a pamphlet that explained what PCOS was and a general overview of the disease, but he never mentioned anything to me about what "other" things go on with my body besides the primary problem (the cysts). And silly me trusted that his pamphlet of information and his little chit chat was the whole truth.

So I started doing some research a couple weeks ago based on that random comment from some un-remembered person.

Honestly, right now I'm so angry with what I've learned. Not angry that I know so much now, but angry that my doctors sat idly by while I've struggled with my weight, never once mentioning to me that the PCOS could very well be the reason for the rapid weight gain, the reason for the terribly difficult time I was having losing the weight and that all these other mysterious symptoms and annoyances could all be related to this one disease.

The thing that gets to me the most is that after reading all this, I believe I am insulin-resistant and that if I'd only followed a very different diet plan that the past 14 months of dieting could actually have worked for me.

What's more ... there's actually drugs that have shown proven results for PCOS patients in their quest to control the insulin inbalance and actually HELP them lose weight.

So my dilemma?

Now I know there's another option out there for me. Even though I've gone through this entire process to prepare for surgery and am about to have my paperwork submited for insurance approval --- I feel like I can't ignore all this.

I need to speak to somebody who can answer all these questions for me. And I know right now that I don't trust my PCP or even my GYN to help me because I have this huge amount of anger toward both of them. I can't move forward with surgery and still feel at peace.

Does anyone have a suggestion for a doctor who might be able to help? Someone who specialized in weight loss, general medicine, GYN and can do a complete analysis of my overall health and maybe suggest which way I should go.

Because right now I'm feeling pretty lost.

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